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Dementia Consumer Pathways

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Content last updated 4/11/2024

Dementia Pathways

The Royal Commission into Aged Care Quality and Safety (Royal Commission) specifically recommended better access to information and advice on dementia, and support services available in the community. 

GCPHN has worked closely with Dementia Australia and a broad range of stakeholders to develop a dementia consumer pathway resource for those living with dementia, their families, and carers. This resource includes a repository of local services and supports, questions to consider asking your doctor, and helpful check lists for the first 6-months after receiving a dementia diagnosis. 

Download a print friendly version of the Dementia Consumer booklets here and here.

 

 This short survey is designed to assess the effectiveness of the GCPHN Dementia booklet ‘Dementia: Resources and support to help you live well‘. Your feedback is valued as it will help to improve future consumer resources.

GCPHN Privacy Policy:

In complying with the Commonwealth Privacy Act 1988 (the Privacy Act) and the Australian Privacy Principles 2014, GCPHN provides the following advice about how GCPHN handles, holds and permits access and correction of personal information in accordance with the Australian Privacy Principles including how to complain about a breach in privacy and request corrections to personal information.

GCPHN collects personal information for the purpose of assisting its activities and functions in the primary health care sector. If your contact details are collected they may be used to forward information and notifications from GCPHN. In some circumstances we may provide information to our funding agency (Department of Health and Aged Care) or to service providers that enter into legal contracts with us which are bound by confidentiality.

There is no legal requirement for you to provide your personal information, however if you choose not to disclose your personal information this may exclude you from our services and programs. Learn more.

Request for Dementia Booklet

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Helplines

National and State Helplines
https://gcphn.org.au/community/older-australians/dementia-consumer-pathways/#national-and-state-helplines Copied to clipboard
Dementia Australia

Free call 1800 100 500
24 hours a day, 7 days a week

 This service provides information and advice, emotional support, and guidance, and will connect you to support services and programs.
Dementia Support Australia

Free call 1800 699 799
24 hours a day, 7 days a week

 This service provides confidential advice, assessment, intervention, education, and specialised support for carers.
Alzheimer’s Queensland

Free call 1800 639 331
24 hours a day, 7 days a week

 This service offers information and
support for those caring for a friend or family member with dementia. Operated by healthcare professionals.
My Aged Care

Call 1800 200 422
or visit here.

 This service can support you through government funding to access help at home, social support, personal care, transport, health care and residential aged care.
NDIS

Call 1800 800 100
or visit here.

 This service can connect people under the age of 65 who have younger onset dementia with necessary supports and services to help them in their daily life, connect with their community and achieve their goals.

Support for Carers

Carer Gateway

Call 1800 422 737

 If you support someone with dementia, you can find information, get support and
access to services in your area and online at Carer Gateway.
Visit online here.

Interpreter and Hearing Services

Translating and Interpreting Service

Call 131 450

 If you need an interpreter to access health care online or at an appointment.
National Relay Service

Call 133 677

 If you are deaf or have a hearing or speech impairment.
Pre-Diagnosis Services
https://gcphn.org.au/community/older-australians/dementia-consumer-pathways/#pre-diagnosis-services Copied to clipboard
Name of Service Description Location Contact Referrals
Gold Coast Health Cognitive Disorders Service This service supports your GP by diagnosing the reason for a person’s change in memory or thinking process. Robina and Tugun 1300 668 936 GP – Via Smart Referrals
Robina Private Hospital Memory Clinic (Assessment Clinic) This clinic provides a comprehensive memory clinic assessment which would benefit people experiencing memory loss or who feel their ability to think clearly has worsened. Robina 07 5665 5100 GP
Post-Diagnosis Services
https://gcphn.org.au/community/older-australians/dementia-consumer-pathways/#post-diagnosis-services Copied to clipboard
Name of Service Description Location Contact Referrals
Dementia Australia

Post-Diagnostic Support Program

 Dementia Australia offers free support for people of all ages diagnosed with dementia, or people assessed with mild cognitive impairment. These sessions are designed to help you manage your diagnosis and live well. Gold Coast 1800 100 500 Dementia Australia
Dementia Australia

What next? After your diagnosis

 Dementia Australia have developed resources for those diagnosed with any form of dementia and have questions about what it means, what to do next and who can help. Gold Coast 1800 100 500 Dementia Australia
Dementia Australia

Education for People Living with Dementia

 This Dementia Australia education program focuses on skills that support maintaining the independence and general wellbeing of people living with dementia in its various stages. Online 1800 100 500 Dementia Australia
Ozcare Dementia Advisory & Support Service The Dementia and Advisory Support Service offers information and support to people with dementia and their families throughout Queensland. Gold Coast 1800 692 273 Self-referrals
Robina Private Hospital Healthy Minds  This is a cognitive stimulation program for people experiencing adjustment problems related to memory loss. Participants focus on age related issues including brain training exercises, creating a healthy balanced lifestyle through mental and physical activities, healthy eating, and social activities. Robina 07 5665 5100 GP
Robina Private Hospital Memory Clinic (BPSD Clinic) This clinic is for the assessment and management for those experiencing adverse Behavioural and Psychological Symptoms of Dementia (BPSD). Robina 07 5556 5100 GP
Help at Home
https://gcphn.org.au/community/older-australians/dementia-consumer-pathways/#help-at-home Copied to clipboard
Name of Service Description Location Phone Website
 

My Aged Care

 For those living with dementia it may become difficult to manage everyday tasks on your own. Services accessed through My Aged Care include help at home, social support, personal care, transport, health care and residential aged care. Gold Coast 1800 200 422

 

 My Aged Care
Dementia Australia

At Home with Dementia

 At Home with Dementia is a free Dementia Australia service that helps you make your home more dementia friendly. Online 1800 100 500 Dementia Australia
Specialist Care
https://gcphn.org.au/community/older-australians/dementia-consumer-pathways/#specialist-care Copied to clipboard
Provider Description Location Contact Referrals
Healthy Ageing Gold Coast Dr Rohit Bansal offers specialist care in dementia types and characteristics, behavioural and psychological symptoms of dementia, cognitive impairment, and delirium.

 

 John Flynn Specialist Suites, Tugun 07 5689 4771

reception@healthyageinggoldcoast.com.au

 GP or other specialists
Dr Philip Morris Dr Philip Morris offer specialist care in cognitive disorders. Southport 07 5531 4838

info@drphilipmorris.com

 GP or other specialists
Life Span Specialists Dr Mohammed Khateeb and Dr Jen Yuh Lim are specialists providing diagnosis, treatment, and management of cognitive disorders. John Flynn Specialist Suites, Tugun

 

Gold Coast Private Specialist Suites, Southport

 07 5598 0234

info@lifespangc.com

 GP or other specialists
Mental Health and Wellbeing
https://gcphn.org.au/community/older-australians/dementia-consumer-pathways/#mental-health-and-wellbeing Copied to clipboard
Name of Service Description Location Phone Website
Dementia Australia

Connecting Peers

 Dementia Australia’s one-to-one Peer Support program is for people living with dementia or a carer. The program connects you with someone who understands your challenges because they have been through a similar experience. Online and phone 1800 100 500 Dementia Australia
Dementia Australia

Counselling Support

 Dementia Australia offers free, confidential, professional counselling for individuals, families, couples, and professional carers at all stages of a dementia journey. Gold Coast 1800 100 500 Dementia Australia
Dementia Australia


Mild Cognitive Impairment: Thinking Ahead

 Mild Cognitive Impairment: Thinking Ahead is Dementia Australia’s free, small-group program supporting people with mild cognitive impairment (MCI). Gold Coast and online 1800 100 500 Dementia Australia
Dementia Australia


Younger Onset Dementia Hub

 The Hub created in consultation with people living with younger onset dementia, informs, educates, and provides support unique to the challenges of those under 65. Online 1800 100 500 Dementia Australia
Dementia Australia

Family Engagement Counselling for Younger Onset Dementia

 Dementia Australia has a free specialist counselling service for family groups, especially where someone lives with younger onset dementia. It recognises the complex relationship issues faced by families impacted by younger onset dementia. Gold Coast 1800 100 500 Dementia Australia
Head to Health Head to Health offers a free, confidential, and friendly mental health assessment and referral service between Monday to Friday 8:30am – 5pm (excluding public holidays) for guidance and support. Phone 1800 595 212 Head to Health
Beyond Blue           

 

 The Beyond Blue Support Service is free and available 24/7 for brief counselling. Counsellors will listen and assist finding extra mental health help. Phone 1300 224 636 Beyond Blue
Red Cross Australia Telecross Telecross is a phone call each day to ‘check you’re ok’ service for people who live alone and are at risk of an accident or illness that may go unnoticed. Phone 1800 885 698 Red Cross Australia
Meals on Wheels Meals on Wheels provide nutritional support to a broad section of the community, including the elderly, people with a disability and other vulnerable people including those recovering from illness, hospital stays or procedures. Gold Coast 1300 909 790

 

 Meals on Wheels
Inspire! Dementia Friendly Choir Inspire! choir is the first dementia-friendly choir on the Gold Coast. Open to all, Inspire! choir especially welcomes individuals living with dementia and their care partners. The choir meets on the 1st and 3rd Thursday of each month during QLD school terms, 1.30 – 3pm at Varsity Lakes Community Resource Centre. Varsity Lakes 0417 704 651

inspirechoirdf@gmail.com

 Inspire! dementia -friendly choir
Allied Health
https://gcphn.org.au/community/older-australians/dementia-consumer-pathways/#allied-health Copied to clipboard
Provider Description Location Contact Referrals
My Dietitian Clinic In person and online consultations, packages, and programs (Complex Care Program), meal plans, and home visits. Mermaid Waters, home visits, online 0488 062 193

 

 Self-referrals, GP
My Nutrition Clinic Consultations, nutritional counselling and support to patients and families, nutrition service packages. Robina, home visits, online 07 5533 8866

 

 Self-referrals, GP
Engage OT Initial assessments, NDIS assessments, therapy, interventions, clinical supervision & education, physical support, psychosocial support, aged-rated support. Reedy Creek and home visits 0435 094 845

 

 Self-referrals, GP
Birch Care Assessments, therapy, clinical interventions, social and community participation, daily personal activities, group-based activities, post-hospital care. Surfers Paradise and home visits 1300 216 716

 

 Self-referrals, GP
Vitality Occupational Therapy OT driving assessments, home/environmental safety assessments, minor/major home modifications, cognitive assessment and intervention, carer training and education, dementia support. Paradise Point and home visits 0434 748 356

 

 Self-referrals, GP
Physio Inq Dementia specific mobile physiotherapy, occupational therapy, exercise physiology and speech pathology. Home visits and online 1300 731 733

 

 Self-referrals, GP
First Class Physio Aged care physiotherapy Home visits  

1800 350 494

 

 Self-referrals, GP
Gen Physio Aged care physiotherapy Home visits 1300 122 884 Self-referrals, GP
Carers Support
https://gcphn.org.au/community/older-australians/dementia-consumer-pathways/#carers-support Copied to clipboard
Name of Service Description Location Website
Dementia Australia

Family and Carers Education

 These education sessions and programs are designed in response to the specific needs of people caring for or supporting a family member living with dementia. The education programs focus on providing knowledge, strategies and support that is aligned with the various stages. Online Dementia Australia
Dementia Australia

Carer, Family and Friends Information

 Information and ideas for carers, family members and friends of someone with dementia. Online

 

 Dementia Australia
Dementia Support Australia Specialised dementia consultants determine which service will be most suitable based on individual circumstance and impact of behaviour change and develop personalised strategies, advice, and practical ways to support the person in care. Gold Coast Dementia Support Australia
Dementia Australia Library This national library service provides access to a comprehensive collection of books, articles, audio resources, eBooks, and DVDs on dementia care, dementia in fiction, resources for children, information for carers and living well. Online and via post

 

 Dementia Australia
Co.As.It Community Services Culturally appropriate support, information and resources for CALD carer and family members of a CALD dementia sufferer in English, Italian or Spanish. Only available to registered clients of Co.As.It. Surfers Paradise Co.As.It Community Services
Carer Gateway In Person and Phone Counselling If you are feeling stressed, anxious, sad, or frustrated, a counsellor can talk with you either in person one-on-one or group session or over the phone. Gold Coast and Phone Carer Gateway
Carer Gateway In Person and Online Self-Guided Coaching You can talk to a professional coach to reflect on your experience and needs, identifying personal goals and create a plan to reach these goals, or you can work through interactive online coaching sessions at your own pace. With a range of topics to help you in your caring role. Gold Coast and online Carer Gateway
Carer Gateway Peer Support Groups Carer Gateway can help you to meet people who also care for a family member or friend. By sharing stories, knowledge, and experience, you can learn from and support each other. Gold Coast and online Carer Gateway
Carer Gateway
Tailored Support Packages		 Tailored support packages are designed to provide you with services and support specific to your needs to help you in your caring role. Gold Coast Carer Gateway
Carers QLD Australia
Carer Health and Wellbeing Program		 Educational program that provides carers with the necessary tools to maintain or improve their general health and wellbeing. Online Carers QLD Australia
Alzheimer’s Queensland South Coast Carer Supports Program Fortnightly face to face support group based on the Gold Coast curated for those caring for a friend or family member living with dementia. Southport Alzheimer’s Queensland
Respite Care
https://gcphn.org.au/community/older-australians/dementia-consumer-pathways/#respite-care Copied to clipboard
Name of Service Description Contact Website
Churches of Christ    Centre-based dementia respite available in Nerang, Benowa, and Southport. Activities include gentle exercise classes, games, arts and crafts and special coffee mornings. 07 5510 1555 Churches of Christ
Anglicare Southern Queensland               

 

 Centre-based in Robina and Southport as well as in-home dementia respite. Activities include exercise classes, discussion and reminiscing, mental stimulation, theme days, arts, and crafts as well as concerts and shows. 1300 610 610

info@anglicaresq.org.au

 Anglicare Southern Queensland
BlueCare               

 

 Centre-based and in-home dementia respite across the Gold Coast where carers encourage meaningful activities, such as gardening, cooking, music, dance, art, and other activities. 1300 869 181 BlueCare
OzCare

 

 Centre-based in Robina and in-home dementia respite. Ozcare Gold Coast offer fun, social outing for people living with dementia and chef cooked meals. 1800 629 273 OzCare
Alzheimer’s Queensland Dementia Nursing Services Dementia nursing services are available 24/7 for
people living with dementia and can provide support with washing and dressing, assistance with
eating, mobility, and daily exercises.		 1800 639 331 Alzehimer’s Queensland
Dementia Australia Cedar House

 

 Centre-based in Mudgeeraba and flexible respite options for people living with dementia. 0755 940 270 Dementia Australia
Carer Gateway
Emergency Respite		 If you become sick or injured and can’t continue to care for your loved one, Carer Gateway service providers can organise for emergency respite services to take over care while you recover. 1800 422 737 Carer Gateway Australia
Planning for the Future
https://gcphn.org.au/community/older-australians/dementia-consumer-pathways/#planning-for-the-future Copied to clipboard
Name of Service Description Location Phone Website
Gold Coast Health Advance Care Planning Service Advance Care Planning (Support Services). Gold Coast Health clinician referral is necessary. Southport and Robina 1300 744 284 Gold Coast Health
Planning your future care today This booklet provides easy to understand information about advance care planning. Please visit the website to download or request your copy or visit your local Gold Coast library. Online and print 07 5635 2455 GCPHN
Office of Public Guardian Independent statutory office established to protect the rights, interests, and wellbeing of adults with impaired decision-making capacity and advocates for their rights, access to services, independence, and choices. Online 1300 653 187 Office of Public Guardian
Public Trustee The Public Trustee can assist by acting as administrator or Financial Attorney in the event an adult needs assistance with managing their financial affairs due to an intellectual disability, psychiatric illness, acquired brain injury or an age-related illness. Southport 07 5588 5333 Public Trustee
Aged & Disability Advocacy Australia Advocacy services including assisting people who are having issues with accessing Commonwealth Funded aged care programs, elder abuse, human rights, and legal help. Online 1800 818 338 ADA Australia
Transport
https://gcphn.org.au/community/older-australians/dementia-consumer-pathways/#transport Copied to clipboard
Name of Service Description Contact Website
Transport for people with disabilities & seniors For information on how seniors and people with disabilities can travel on the Gold Coast in a safer and easier way please visit the City of Gold Coast website. 1300 465 326 City of Gold Coast
TransitCare TransitCare is a not-for-profit organisation providing a range of services to seniors, people with disabilities, and those who have difficulty getting around. 1300 153 636 TransitCare

For Patients, Families and Carers

Dementia Australia Help Sheets
https://gcphn.org.au/community/older-australians/dementia-consumer-pathways/#dementia-australia-help-sheets Copied to clipboard

Memory changes 

This help sheet describes some of the differences between memory loss as a part of normal ageing and as a symptom of dementia. It provides some tips for keeping your memory sharp. 

View resource 

  

Diagnosing dementia 

This help sheet provides information about the early signs of dementia, the techniques used to diagnose dementia and the importance of an early and correct diagnosis. 

View resource 

  

Early planning 

This help sheet discusses ways to plan ahead and organise financial and legal affairs and lists people and organisations that can help. 

View resource 

  

Adapting your home 

This help sheet provides information on how to adapt a home to be dementia friendly. It explains how a dementia-friendly home can help a person living with dementia feel safe and supported. 

View resource 

  

Information for family and friends 

This help sheet is designed for people with dementia and their families to provide information to friends, neighbours and others about dementia. It explains what dementia is, how it affects people and ways to help. 

View resource 

  

Driving  

This help sheet describes the effects that dementia may have on driving skills and suggests ways to help a driver who has been diagnosed with dementia. 

View resource 

 

Vascular dementia 

This help sheet describes vascular dementia, as well as its symptoms, causes, types, diagnosis and treatment. 

View resource 

  

Lewy body disease 

This help sheet has been developed to assist your understanding of Lewy body disease and the disorders that arise from it. 

View resource

  

Alzheimer’s disease 

This help sheet describes Alzheimer’s disease, as well as its symptoms, causes, progression and treatment. 

View resource   

 

Looking after families and carers

2.7 million Australians provide full or part time support and care for people, ageing, living with a disability or with a life limiting condition such as dementia. This resource provides hints and activities to look after yourself so you can continue to support your family member.   

View resource 

Request for Dementia Australia Help Sheets

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