Primary Sense Secondary Purposes

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Content last updated 8/05/2024

Under clause 6.4 of the Data Sharing and Software License Agreement (Primary Sense), GCPHN may use Shared Data for any Permitted Purpose, including publishing and dissemination of Aggregated Data to third parties. Permitted Purposes include:

primary uses (refer to Item 6 of Schedule 1 Particulars) and
secondary purposes (refer to Item 6A of Schedule 1 Particulars).

Examples of research and publications that were previously published, that might be considered secondary purposes under the clause 6.4 include:

Primary Sense: a new population health management tool for general practice
Supporting general practice to make timely decisions for better health care: a population health approach – PubMed (nih.gov)
Supporting quality and safety in general practice: Response rates to computer decision support – PubMed (nih.gov)

Please find below a record of current/active secondary purposes for Shared Data as per Item 6A of the Schedule of Particulars:

Name and details of project using Shared Data for a secondary purpose	VaxiMums project: Pregnancy loss <24weeks gestation and maternal vaccination
Alignment to Item 6A of the Schedule of Particulars	This study will use Primary Sense (PS) data for a research project conducted in collaboration with University of Queensland (UQ). It aligns with the primary purpose for using PS data to assist in the development of community health promotion and prevention activities, and population health planning. Data shared with UQ will be completely de-identified and will not allow for re-identification of patients or GPs. All analyses will be made at the regional level, and not at the level of individual general practices.
Approved by	This study has been endorsed by Gold Coast Primary Sense Clinical Advisory Group and received Ethics approval by Queensland Health (HREC/2023/MNHA/96960) and Bond University HREC (JS00701).
Expected timeframe	May 2024 – December 2027
Progress	Data collection to commence in May 2024
Date to opt out by	22 May 2024

Research Information

OPT OUT

Opt out of Primary Sense Data shared with GCPHN for secondary purposes

https://gcphn.org.au/primary-sense-secondary-purposes/#opt-out-of-primary-sense-data-shared-with-gcphn-for-secondary-purposes Copied to clipboard

PREVIOUS STUDIES

Validation of Primary Sense Frailty Flag

https://gcphn.org.au/primary-sense-secondary-purposes/#validation-of-primary-sense-frailty-flag Copied to clipboard

Name and details of project using Shared Data for a secondary purpose	Validation of Primary Sense Frailty Flag
Alignment to Item 6A of the Schedule of Particulars	This study will use Primary Sense (PS) data for a research project conducted in collaboration with University of Queensland (UQ). It aligns with the primary purpose for using PS data to assist in the development of community health promotion and prevention activities, and population health planning. Data shared with UQ will be completely de-identified and will not allow for re-identification of patients or GPs. All analyses will be made at the regional level, and not at the level of individual general practices.
Approved by	This study has been endorsed by Gold Coast Primary Sense Clinical Advisory Group and received ethics clearance by Bond University Human Ethics Research Committee (JS00684).
Expected timeframe	January 2024 – February 2024
Progress	Data collection to commence in January 2024
Date to opt out by	12 January 2024

Research Information

Indicators of physical health among patients with mental health diagnosis - November 2024

https://gcphn.org.au/primary-sense-secondary-purposes/#indicators-of-physical-health-among-patients-with-mental-health-diagnosis-november-2024 Copied to clipboard

Name and details of project using Shared Data for a secondary purpose	Indicators of physical health among patients with mental health diagnosis: analysis of general practice data
Alignment to Item 6A of the Schedule of Particulars	The AIHW is collating aggregated general practice data on dementia to develop a consolidated snapshot of dementia prevalence and management. Outputs from this project will strengthen the evidence base on dementia which can help inform program implementation, support service delivery and resource allocation by GCPHN and general practices. Data shared with AIHW will be de-identified, and all analysis will be at the regional level, and not at the level of individual general practices or GPs.
Approved by	This study has been endorsed by Gold Coast Primary Sense Clinical Advisory Group and received ethics clearance by Bond University Human Ethics Research Committee (JS00685).
Expected timeframe	November 2023 – January 2024
Progress	Data collection to commence in November 2023
Date to opt out by	25 October 2023

Research Information

AIHW Dementia Study - September 2023

https://gcphn.org.au/primary-sense-secondary-purposes/#aihw-dementia-study-september-2023 Copied to clipboard

Name and details of project using Shared Data for a secondary purpose	AIHW General practice data demonstration project: Dementia
Alignment to Item 6A of the Schedule of Particulars	The AIHW is collating aggregated general practice data on dementia to develop a consolidated snapshot of dementia prevalence and management. Outputs from this project will strengthen the evidence base on dementia which can help inform program implementation, support service delivery and resource allocation by GCPHN and general practices. Data shared with AIHW will be de-identified, and all analysis will be at the regional level, and not at the level of individual general practices or GPs.
Approved by	This project has been endorsed by GCPHN Primary Sense Clinical Advisory Group and received approval from AIHW’s Ethics Committee. The project has received support from the PHN National Data Governance Committee and the PHN Steering Committee.
Expected timeframe	September 2023 – December 2023
Progress	Data collection to commence in mid-September 2023
Date to opt out by	13 September 2023

Research Information

Opioid User Study - August 2023

https://gcphn.org.au/primary-sense-secondary-purposes/#opioid-user-study-august-2023 Copied to clipboard

Name and details of project using Shared Data for a secondary purpose	Which patients are at risk of becoming long term opioid users? Retrospective analysis of primary care data from the Gold Coast
Alignment to Item 6A of the Schedule of Particulars	This study will use Primary Sense data for a research project conducted in collaboration with Bond University. It aligns with the primary purpose for using PS data to assist in the development of community health promotion and prevention activities, and population health planning. Data shared with Bond University will be completely de-identified and will not allow for re-identification of patients or GPs. All analyses will be made at the regional level, and not at the level of individual general practices.
Approved by	This study has been reviewed and endorsed by GCPHN Primary Sense Clinical Advisory Group (29 May 2023) and received full ethics clearance by Bond University Human Ethics Research Committee (JS00677; 18 July 2023)
Expected timeframe	August 2023 – December 2023
Progress	Data collection to commence in August 2023
Date to opt out by	15 August 2023

Research Protocol